About
Parents of Galactosemic Children, Inc.
Parents of Galactosemic Children, Inc. (PGC)
is a national, non-profit, volunteer
organization whose mission is to provide
information, support, and networking
opportunities to families affected by
galactosemia. PGC was founded in 1985 by
a handful of mothers from across the
country who wanted to band together to
provide mutual support to each other and
begin to gain a more widespread
understanding of the disorder and its
treatment. In over 20 years since then,
PGC has grown to serve a mailing list in
excess of 1000, including interested
parties on every continent of the globe.
PGC provides support to families;
especially those with babies newly
diagnosed with classic galactosemia.
This support can come in the form of
information to help educate scared and
confused parents, assistance in securing
appropriate medical advice for
professionals, information about dietary
management, etc. PGC also produces
newsletters, e-mails, and a website (www.galactosemia.org)
in order to keep families up to date on
items of interest.
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